Análisis de la legibilidad de la información sanitaria dirigida a la población vulnerable

Autores/as

  • Noelia Pelicano Piris PROFESOR UNIVERSIDAD ANTONIO DE NEBRIJA

DOI:

https://doi.org/10.53645/revprop.v5i2.95

Palabras clave:

Internet, realidad, comprensión, usabilidad, migrante, sanación, e-salud

Resumen

El presente estudio evalúa la calidad de los materiales educativos en salud dirigidos a los usuarios/as migrantes, facilitados por organismos públicos, y disponibles en internet, con el fin de favorecer los autocuidados respecto a su salud, mediante un estudio observacional descriptivo, en el que se identifican páginas web de salud de organismos oficiales para población inmigrante, mediante el uso del motor de búsqueda Google. Tras analizarse las características interactivas de las webs seleccionadas, y del total de documentos disponibles, se evalúa la legibilidad del contenido con el analizador MU y la comprensión y usabilidad con la Herramienta de Evaluación de Materiales de Educación del Paciente (PEMAT), por observadores. Como resultados se obtiene que las páginas webs de organismos oficiales para inmigrantes, son precisas, con credibilidad, avaladas por fuentes y accesibles, pero dichas webs y el material del que disponían no estaban actualizados. La media de legibilidad de los documentos en castellano fue de 49,10 (DT=6,61); para los documentos en francés de 51,87 (DT=8,58) y los documentos en inglés 64,57 (DT=8,73). La puntuación promedio de comprensión PEMAT fue de 68,69 (DT=16,95) y de capacidad de acción 54,41 (DT= 24,26). Se concluye que los materiales educativos en salud no alcanzaron una calidad óptima. El nivel de lectura está por encima del promedio de un adulto, por lo que hay que hacer esfuerzos para mejorar la comprensión y usabilidad de los textos, así como contar con el público diana para la elaboración de materiales de educación sanitaria.

Descargas

Los datos de descargas todavía no están disponibles.

Citas

Abdi, I., Bernice, M., Sealea, H. (2020).Evaluating the health literacy demand and cultural appropriateness of online immunization information available to refugee and migrant communities in Australia. Vaccine, 38 (41), pp. 6410-6417. https://doi.org/10.1016/j.vaccine.2020.07.071

Alliende, F. (2002). La legibilidad de los textos. Manual para la evaluación, selección y elaboración de textos. Andrés Bello

Alsaiari, A., Joury, A., Aljuaid, M., Wazzan, M., y Pines, J. M. (2016). The Content and Quality of Health Information on the Internet for Patients and Families on Adult Kidney Cancer. Journal of Cancer Education, 4-29.doi: http://dx.doi.org/10.1007/s13187-016-1039-9

Arsenault, M., Blouin M.J., Guitton, M.J. (2016) Information quality and dynamics of patients' interactions on tonsillectomy web resources. Internet Interventions, 4, pp. 99–104. http://dx.doi.org/10.1016/j.invent.2016.05.002

Avis, L.S. Komarnicki, A., Farmer, A.P., Holt, N.L., Perez, A., Spence, N., Ball, G. (2015). Tools and resources for preventing childhood obesity in primary care: a method of evaluation and preliminary assessment. Patient Education Counseling, 99(5), pp. 769 – 7. 10.1016 / j.pec.2015.12.006

Balakrishnan, V., Zachariah Chandy, M.S, Sunil, P., Berma, M.D. (2015). Are Online Zenker’s Diverticulum Materials Readable and Understandable? Otolaryngology–Head and Neck Surgery, 155 (5), pp.758 – 763.10.1177/0194599816655302

Balakrishnan, V., Zachariah, M.S., Hseih, A., Bui, T.L. (2016). Readability and Understandability of Online Vocal Cord Paralysis Materials. Otolaryngology–Head and Neck Surgery, 154, (3), pp. 460 – 464 doi:10.1177/0194599815626146

Barrio, I. (2007). Legibilidad y Salud: Los Métodos de Medición de la Legibilidad y su Aplicación al Diseño de Folletos Educativos sobre Salud. (Tesis Doctoral). Departamento de Medicina Preventiva y Salud Pública. Facultad de Medicina. Universidad Autónoma de Madrid. Granada.

Basagoiti, I. (2012.). Alfabetización en salud. De la información a la acción. Valencia. ITACA/TSB. Disponible en http://www.salupedia.org/alfabetizacion

Bas-Sarmiento, P., Fernández-Gutiérrez, M., Albar-Marín, M. J. y García-Ramírez, M. (2015). Percepción y experiencias en el acceso y uso de los servicios sanitarios en población inmigrante. Gaceta Sanitaria, 29 (4), pp. 244-251. 10.1016/j.gaceta.2015.03.008

Behmer, R., Gold, J., Lad, M., Gupta, R., Ganapa, S., Mammis, A. (2020). Health literacy among neurosurgery and other surgical subspecialties: Readability of online patient materials found with Google. Clinical Neurology and Neurosurgery, 197, 106141. https://doi.org/10.1016/j.clineuro.2020.106141

Berelson, B. (1952). Content Analysis in Communication Research. Free Press.

Berland, G.K., Elliott, M.N., Morales, L.S., Algazy, J.I., Kravitz, RL…Broder MS. (2001). Health Information on the Internet. Accessibility, Quality, and Readability in English and Spanish. Journal of the American Medical Association, 285(20), pp. 2612-2621. doi:10.1001/jama.285.20.2612

Blanco Pérez, A., Gutiérrez, Couto, U. (2002). Legibilidad de las páginas web sobre salud dirigidas a pacientes y lectores de la población general. Revista Española Salud Publica, 76(4), pp. 321–31.

Bompastore, N., Cisu, T., Holoch, P. (2018). Separating the Wheat from the Chaff: An Evaluation of Readability, Quality, and Accuracy of Online Health Information for Treatment of Peyronie Disease. Urology, 118, pp. 59-64 https://doi.org/10.1016/j.urology.2018.02.054

Boyer, C., Selby, M., Scherrer, J.R., Appel, RD. (1998). The Health on the Net Code of Conduct for medical and health Websites. Computers in Biology and Medicine, 28, pp. 603–10. http://dx.doi.org/10.1016/S0010-4825(98)00037-7

Breakey, V. R., Harris, L., Davis, O., Agarwal, A., Ouellette, C., Akinnawo, E. y Stinson, J. (2017). The quality of information about sickle cell disease on the Internet for youth. Pediatric Blood Cancer, 64. e26309. 10.1002 / pbc.26309

Buccini, L., Iverson, D., Caputi, P., Jones, C. (2010). An Australian based study on the readability of HIV/AIDS and type 2 diabetes clinical trial informed consent documents. Journal Bioethical Inquiry, 7 (3), pp. 313–319.

Burkell, J.A. (2004). Health information seals of approval: What do they signify? Information Communication and Society, 7(4), pp. 491-509. 10.1080/1369118042000305610

Castillo-Ortiza, J.D., Valdivia-Nunoa,J.J., Ramirez-Gomeza,A., Garagarza-Mariscala, H., Gallegos-Riosa, C… Flores-Hernandez G. (2017). Readability, relevance and quality of the information in Spanish on the Web for patients with rheumatoid arthritis. Reumatología Clínica, 13, pp. 139-144. doi: 10.1016/j.reuma.2016.04.009

Charbonneau D.H. (2012). Readability of Menopause Web Sites: A Cross Sectional Study. Journal of Women & Aging, 24 (4), pp. 280-291. doi: http://dx.doi.org/10.1080/08952841.2012.708574

Cheng, C. y Dunn, M. (2015). Health literacy and the Internet: a study on the readability of Australian online health information. Australian and New Zealand Journal of Public Health, 39, pp. 309–314. 10.1111/1753-6405.12341

Cherla, D.V., Sanghvi, S., Choudhry, O.J., Liu, J.K., Eloy, J.A. (2012). Readability Assessment of Internet-based patient education materials related to endoscopic sinus surgery. Laryngoscope 122, pp. 1649–1654. doi: 10.1002 / lary.23309

Chesser, A., Burke, A., Reyes, J., Rohrberg, T. (2016). Navigating the digital divide: A systematic review of eHealth literacy in underserved populations in the United States. Informatics for Health and Social Care, 41(1), pp. 1-19. 10.3109/17538157.2014.948171

Chumber, S., Huber, J., Ghezzi, P. (2014). A Methodology to Analyze the Quality of Health Information on the Internet. The Diabetes Educator, 41 (1), pp. 95-105. 10.1177/0145721714560772

Cisua, T.I., Mingina, G.C., Baskinb, L.S. (2019). An evaluation of the readability, quality, and accuracy of online health information regarding the treatment of hypospadias. Journal of Pediatric Urology, 15(1) 40.e1-40. e6. https://doi.org/10.1016/j.jpurol.2018.08.020

Cochrane, Z., Gregory, P., Wilson, A. (2012). Readability of consumer health information on the internet: A comparison of U.S. government-funded and commercially funded websites. Journal of Health Community, 17 (9), pp. 1003–1010.:10.1080 / 10810730.2011.650823

Colaco, M., Svider, P., Agarwal, N., Eloy, J.A., Jackson, I.M. (2013). Readability assessment of online urology patient education materials. The Journal of Urology, 189, pp. 1048–1052. doi.org/10.1016/j.juro.2012.08.255

Cooke, A., Gray, L. (2002). Evaluating the quality of internet-based information about alternative therapies: development of the biome guidelines. Journal of Public Health Medicine, 24, pp. 261–267.

Corcoran, N., Ahmad, F. (2016). The readability and suitability of sexual health promotion leaflets. Patient Educations Counseling, 99, pp. 284–286. 10.1016 / j.pec.2015.09.003

Craigie, M., Loader, B., Burrows, R., Muncer, S. (2002). Reliability of Health Information on the Internet: An Examination of Experts' Ratings. Journal of Medical Internet Research, 4(1), 2. doi: 10.2196/jmir.4.1.e2

Dale, E. y Chall, J.S. (1948a). A Formula for Predicting Readability. Educational Research Bulletin, 17(1), pp. 11-20-28. DuBay WH. The Classic Readability Studies. http://www.ecy.wa.gov/quality/plaintalk/resources/classics.pdf

Dale, E. y Chall, J.S. (1948b). A Formula for Predicting Readability: Instructions. Educational Research Bulletin, 17, pp. 37-54. DuBay WH. The Classic Readability Studies. http://www.ecy.wa.gov/quality/plaintalk/resources/classics.pdf

Department of Health and Human Services, Office of Disease Prevention and Health Promotion. (2010). Health literacy online: A guide to writing and designing easy-to-use health Web sites. Washington, DC. https://health.gov/healthliteracyonline/2010/Web_Guide_Health_Lit_Online.pdf

Devea R., De, BS., Justine Seivright, B.S., Danielle Yee, MD., Hsiao, M.D., Shi, V. (2022). Readability, quality, and timeliness of patient online health resources for urticaria. Journal of the American Academy of Dermatology, 86 (5), pp. 1182-1185, https://doi.org/10.1016/j.jaad.2021.04.089

Diviani, N., Van den Putte, B., Giani, S, Van Weert, J.C. (2015). Low Health Literacy and Evaluation of Online Health Information: A Systematic Review of the Literature. Journal of Medical Internet Research, 17(5), 112. 10.2196/jmir.4018

Do, B.N., Nguyen, P.A., Pham, K.M., Nguyen, H.C., Nguyen, M.H., Tran, C.Q…Van Duong T. (2020). Determinants of health literacy and its associations with health-related behaviors, depression among the older people with and without suspected COVID-19 symptoms: a multi-institutional study. Frontiers in Public Health, 8. https://doi.org/10.3389/fpubh.2020.581746

Doak, C.C., Doak, L.G., Root, JH. (1996). Teaching patients with low literacy skills. 2. Philadelphia: Lippincott-Raven Company, 212 https://www.hsph.harvard.edu/healthliteracy/resources/teaching-patients-with-low-literacy-skills/

Edmunds, M. R., Denniston, A. K., Boelaert, K., Franklyn, J. A., y Durrani, O. M. (2014). Patient Information in Graves’ disease and Thyroid-Associated Ophthalmopathy: Readability Assessment of Online Resources. Thyroid, 24(1), pp. 67–72. 10.1089/thy.2013.0252.

Ellimoottil, C., Polcari, A, Kadlec, A, Gupta, G. (2012). Readability of websites containing information about prostate cancer treatment options. The Journal of Urology, 188 (6), pp. 2171–2175. 10.1016 / j.juro.2012.07.105

Eloy, J.A., Li, S., Kasabwala K, Agarwal N., Hansberry, D.R., Baredes, S., Setzen, M. (2012). Readability assessment of patient education materials on major otolaryngology association websites. Otolaryngology Head Neck Surgery, 47, pp. 848–854. 10.1177 / 0194599812456152

Eysenbach, G. y Köhler, C. (2002a). How do consumers search for and appraise health information on the World Wide Web? Qualitative study using focus groups, usability tests, and in-depth interviews. British Medical Journal, 324, pp. 573–577. doi.org/10.1136/bmj.324.7337.573

Eysenbach, G., Powell, J., Kuss, O., Sa, E.R. (2002b). Empirical studies assessing the quality of health information for consumers on the World Wide Web: A Systematic Review. The Journal of the American Medical Association, 287(20), pp. 2691-2700. doi:10.1001/jama.287.20.2691

Fahy, E., Hardikar, R., Fox, A., Mackay, S. (2014). Quality of patient health information on the internet: Reviewing a complete and evolving landscape. Australiasian Medical Journal, 7 (1), pp. 24-28. http//dx.doi.org/10.4066/AMJ.2014.1900.

Fernández A., Insfrana, E., Abrahãoa, S. (2011). Usability evaluation methods for the web: A systematic mapping study. Information and Software Technology, 53, pp. 789–817

Ferrando Belart, V. (2004). La legibilidad: un factor fundamental para comprender un texto. Atención Primaria, 34, pp. 143-146.

Ferrán-Ferrer, N., Pérez Montoro, M. (2012) Búsqueda y recuperación de la información. Barcelona: Editorial UOC.

Feufel, M.A., y Stahl, S.F. (2012). What do Web-use skill differences imply for online health information searches? Journal of Medical Internet Research, 14(3), 87. http://www.jmir.org/2012/3/e87/

Finnie, R. K. C., Felder, T. M., Linder, S. K., y Mullen, P. D. (2010). Beyond Reading Level: A Systematic Review of the Suitability of Cancer Education Print and Web-based Materials. Journal of Cancer Education, 25(4), pp. 497–505. http://doi.org/10.1007/s13187-010-0075-0

Fitzsimmons, P., Michael, B., Hulley, J., Scott, G. (2010). A readability assessment of online Parkinson’s disease information. Journal of the Royal College Physicians Edinburgh, 40(4), pp. 292-296.doi: 10.4997/JRCPE.2010.401

Flesch R. (1958). How to Write, Speak and Think More Effectively. Harper.

Flesch, R. (1943). Estimating the Comprehension Difficulty of Magazines Articles. Journal of General Psysiology, 28, pp. 63-80. http://dx.doi.org/10.1080/00221309.1943.10545195

Flesch, R.F. (1948). A new readability yardstick. Journal of Applied Psychology, 32, pp. 221–233 10.1037 / h0057532.

Friedman, D.B., Hoffman-Goetz, L. (2006). A systematic review of readability and comprehension instruments used for print and web-based cancer information. Health Education Behavior, 33, pp. 352–373. 10.1177 / 1090198105277329

Friis, K., Aaby, A., Lasgaard, M., Pedersen, M.H., Osborne, R.H., Maindal, H.T. (2020). Low health literacy and mortality in individuals with cardiovascular disease, chronic obstructive pulmonary disease, diabetes, and mental illness: a 6-year population-based follow-up study. International Journal Environmental Research and Public Health, 17 (24). 10.3390/ijerph17249399

García-Rivera, E., San Norberto, M., Fidalgo, L., Domingos, N., Cenizo, I., Estévez Fernández, C., Vaquero, P. (2020). Legibilidad de los consentimientos informados en cirugía vascular y análisis de su evolución en el tiempo. Journal of Healthcare Quality Research, 35 (6), pp. 355-363

Ghasemaghaei, M., Hassanein, K. (2016). A macro model of online information quality perceptions: A review and synthesis of the literature. Computers in Human Behavior, 55, pp. 972–991. doi.org/10.1016/j.chb.2015.09.027

González-Alliende, F. (1994). La Legibilidad de los Textos. Ed. Andrés Bello.

González-Soltero, R., Blanco, M.J. Biscaia, J. M. Mohedano, R.B. Grille-Mariscal, M. Blanco, M.A. (2015). Análisis del contenido, posicionamiento y calidad de páginas web en español relacionadas con la nutrición y los trastornos de la conducta alimentaria. Nutrición Hospitalaria, 31(3), pp. 1394-1402. http://www.redalyc.org/articulo.oa?id=309235369054

Google PageRank (PR). (2016) Recuperado de: http://ninjaseo.es/google-pagerank-pr-que-es-como-calcularlo-y-mejorarlo/

Gorczynski, P., Patel, H, y Ganguli, R. (2013) Evaluating the accuracy, quality, and readability of online physical activity, exercise, and sport information for people with schizophrenia. Mental Health and Physical Activity 6, (2) pp. 95–99. doi: 10.1016/j.mhpa.2013.06.001

Gordon EJ, Rodde J, Gil S, Caicedo JC. (2012). Quality of Internet education about living kidney donation for Hispanics. Progress in Transplantion, 22, pp. 294–303. 10.7182/pit2012802

Guitton, M.J. (2015a). Online maritime health information: an overview of the situation. International Maritime Health, 6, pp. 139–144. 10.5603 / IMH.2015.0028

Guitton, M.J. (2015b). Swimming with mermaids: communication and social density in the second life merfolk community. Computers Human Behavior, 48, pp. 226–235. http://dx.doi.org.bibezproxy.uca.es:2048/10.1016/j.chb.2015.02.004

Gunning Fog Index (acceso libre). http://gunning-fog-index.com/

Gunning, R. (1968). The Technique of Clear Writing (Revised ed.) McGraw-Hill Book Company.

Hamnes, B., Van Eijk-Hustings and Primdahl, J. (2016). Readability of patient information and consent documents in rheumatologically studies. British Medical Ethics, 17, 42.10.1186/s12910-016-0126-0

Hansberry, D.R., Agarwal, N., Gonzalez, S.F., Baker, S.R. (2014). Are we effectively informing patients? A quantitative analysis of on-line patient education resources from the American Society of Neuroradiology. American Journal Neuroradiology, 35, pp. 1270–1275. 10.3174/ajnr.A3854

Helitzer, D., Hollis, C., Cotner, J., Oestreicher, N. (2009). Health literacy demands of written health information materials: an assessment of cervical cancer prevention materials. Cancer Control, 16, pp. 70–78.

Herrera-Viedma, E., Pasi, G., Lopez-Herrera, A.G., Porcel, C. (2006). Evaluating The Information Quality of websites: a methodology based on fuzzy computing with words. Journal of the American Society for Information Science and Technology, 57(4), pp. 538–549. doi: 10.1002/asi.20308

Impicciatore, P., Pandolfini, C., Casella, N., Bonati, M. (1997). Reliability of health information for the public on the World Wide Web: systematic survey of advice on managing fever in children at home. British Medical Journal, 28, 314, pp. 1875–1879. doi: http://dx.doi.org/10.1136/bmj.314.7098.1875

INE (2021). Encuesta sobre Equipamiento y Uso de Tecnologías de Información y Comunicación en los Hogares. https://www.ine.es/prensa/tich_2021.pdf

Irwin, S.C., Lennon, D.T., Stanley, C.P., Sheridan, G.A., Walsh, J.C., (2021). Ankle conFUSION: the quality and readability of information on the internet relating to ankle arthrodesis. Surgeon, 19 (6), pp. 507-511. https://doi.org/10.1016/j.surge.2020.12.001

Jahan, S., Al-Saigul A.M., Alharbi, Ali M., Abdelgadir M.H. (2014). Suitability assessment of health education brochures in Qassim province, Kingdom of Saudi Arabia. Journal of Family and Community Medicine, 21(3), pp. 186–192. 10.4103/2230-8229.142974

Jiménez Pernett J., García Gutiérrez, J.F., Bermúdez Tamayo, C. (2009). Accesibilidad de sitios web sobre salud para mayores. Revista Española Geriatría Gerontología, 44(6), pp. 342–348. 10.1016/j.regg.2009.07.001

Kecojevic, A., Basch C.H., Garcia P. (2020). Readability analysis of online health information on preexposure prophylaxis (PrEP) Public Health, 182, pp. 53-55 https://doi.org/10.1016/j.puhe.2020.02.002

Kind, T., Huang, Z., Farr, D., Pomerantz, KL. (2015). Internet and computer access and use for health information in an underserved community. Ambulatory Pediatrics, 5, pp. 117–21. 10.1367 / A04-107R.1

Kreuter M., Green M., Cappella J., Slater M., Wise M., Storey, D…Woolley S. (2007) Narrative communication in cancer prevention and control: a framework to guide research and application. Annals of Behavioral Medicine, 33, pp. 221–235.

Kružliaková, N., Porter, K., Ray, P.A., Hedrick, V., Brock, D.J., Zoellner, J. (2021). Understanding and advancing organizational health literacy within a public health setting. Health Literacy Research and Practice, 5 (1), pp. 35-48. 10.3928/24748307-20210114-01

Lambert K., Mullan J., Mansfield K., Koukomous A. & Mesiti L. (2017) Evaluation of the quality and health literacy demand of online renal diet information. Journal of Human Nutrition Dietetics. doi: 10.1111/jhn.12466

Lim, S.T., Kelly, M., Johnston, S. (2021). Re: ‘Readability of online patient education material for the novel coronavirus disease (COVID-19): a cross-sectional health literacy study’. Public Health, 190, pp.145-146 https://doi.org/10.1016/j.puhe.2020.09.001

Lupón, M., Genis, M. (2021). Public knowledge of low vision and blindness, and readability of on-topic online information. Journal of Optometry, 14 (3), pp. 240-246. https://doi.org/10.1016/j.optom.2020.06.005

Mackert, M., Kahlor, L., Tyler, D., Gustafson, J. (2009). Designing e-health interventions for low-health-literate culturally diverse parents: addressing the obesity epidemic. Telemedice and e-health, 15, pp. 672–677. http://dx.doi.org/10.1089/tmj.2009.0012

Mariscal-Crespo, M.I., Coronado-Vázquez, M.V., Ramírez-Durá, M.V. (2017). Análisis global de la legibilidad de los documentos de consentimiento informado utilizados en los hospitales públicos de España. Revista de calidad asistencial, 32 (4), pp. 200-208 10.1016/j.cali.2017.01.003

Martínez de Sousa J. (2005). Manual de edición y autoedición, Pirámide.

McCall, W.A., Schroeder, L.C. (1979). McCall-Crabbs Standard Test Lessons in Reading. Teachers College Press.

McInnes, N., Haglund, B.J. (2011). Readability of online health information: implications for health literacy. Informatics Health Social Care, 36(4), pp. 173-89. doi: 10.3109/17538157.2010.542529.

McLaughlin, G.H. (1969). SMOG grading: A new readability formula. Journal of Reading, 12, pp. 639–646 file:///C:/Users/Noelia/Downloads/WRRSMOG_Readability_Formula_G._Harry_McLaughlin__1969_%20(2).pdf

Minayo, M.C. (2002). La Etapa de Análisis en los Estudios Cualitativos. En: Mercado FJ, Gastaldo D, Calderón C. Paradigmas y Diseños de la Investigación Cualitativa en Salud. Métodos, Análisis y Ética. Guadalajara, Jalisco (México): Universidad de Guadalajara, pp. 239-69.

Moore, J.E., Millar, B.C. (2021). Improving IPC health literacy through better communication: investigation of the readability of IPC patient information leaflets from several sources. Journal of Hospital Infection, 118, pp. 15-19. https://doi.org/10.1016/j.jhin.2021.09.007

Moreno, J.M., Morales del Castillo, J.M., Porcel, C., Herrera-Viedma, E. (2010). A quality evaluation methodology for health-related websites based on a 2-tuple fuzzy linguistic approach. Soft Computing, 14, 887. 10.1007/s00500-009-0472-7

Mousiolis, A., Michala, L., Antsaklis, A. (2012). A Polycystic ovary syndrome: double click and right check. What do patients learn from the Internet about PCOS? European Journal of Obstetrics Gynecology and Reproductive Biology, 163(1), pp. 43-6. doi: 10.1016/j.ejogrb.2012.03.028

Muñoz-Baquedano, M. (2006). Legibilidad y variabilidad de los textos. Viña del Mar: Universidad de Playa Ancha de Ciencias de la Educación. Recuperado de: http://legibilidadmu.cl/1.pdf

Murphy, B., Irwin, S., Condon, F., Kennedy , C. (2022). Readability and quality of online information for patients pertaining to revision knee arthroplasty: An objective analysis. Surgeon, (Article in press) https://doi.org/10.1016/j.surge.2021.12.009

Murphy, S.T., Frank, L.B. y Baezconde-Garbanati, L. (2013). Narrative versus non-narrative: the role of identification, transportation and emotion in reducing health disparities. Journal of Communications, 63, pp. 1–26.10.1111/jcom.12007

Nason, G.J., Baker, M.M., Damien, P. Noel, J., Moore, D., Kiely, P.J. (2012). Scoliosis-specific information on the internet: has the "information highway" led to better information provision? Spine Update, 1, 37(21), pp. 1364-1369. doi: 10.1097/BRS.0b013e31826619b5

National Institutes of Health. (2017). How to Write Easy to Read Health Materials. Recuperado de: http://www.nlm.nih.gov/medlineplus/etr.html

Navas Martín, M.A., Albornos-Muñoz, L., Escandell-García, C. (2012). Acceso a Fuentes de información sobre salud en España: Como combatir la Infoxicación. Revista Enfermería Clínica, 22(3), pp. 154-155.

Nölke, L., Mensing, M., Krämer, A., Hornberg, C. (2015). Sociodemographic and health-(care-) related characteristics of online health information seekers: a cross-sectional German study. British Public Health, 15, 31. 10.1186/s12889-015-1423-0

O Doinn, T., Broderick, J.M., Abdelhalim, M.M., Quinlan, J.F. (2020). Readability of patient educational materials in hip and knee arthroplasty: has a decade made a difference? Journal Arthroplasty, 35 (11), pp. 3076-3083. https://doi.org/10.1016/j.arth.2020.05.076

Oliffe, M., Thompson. E., Johnston, J., Freeman, D., Bagga, H., Wong, P.K. (2019). Assessing the readability and patient comprehension of rheumatology medicine information sheets: a cross-sectional Health Literacy Study. British Medical Journal Open, 9 (2). https://doi.org/10.1136/bmjopen-2018-024582

Ostrovsky, A.M. (2022). Readability of online health information associated with the most common emergency department diagnoses. The American Journal of Emergency Medicine, 53, pp. 266-268. https://doi.org/10.1016/j.ajem.2021.04.071

Paasche-Orlow, M.K., Brancati, F.L., Taylor, H.A., Jain, S., Pandit, A., Wolf, M.S. (2013). Readability of consent form templates: a second look. IRB: Ethics & Human Research, 35(4), pp. 12–19.

Pace, C., Atcherson S.R., Zraick, R. (2012). A computer-based readability analysis of patient-reported outcome questionnaires related to oral health quality of life. Patient Education Counseling, 89, pp. 76–81 http://dx.doi.org.bibezproxy.uca.es:2048/10.1016/j.pec.2012.05.010

Pandolfini, C., Impicciatore, P., Bonati, M. (2000). Parents on the web: risks for quality management of cough in children. Pediatrics, 105 (1). doi: http://www.pediatrics.org/cgi/content/full/105/1/e1

Patel, S.K., Gordon, E., Wong; C.A., Grobman, W.A., Goucher., H., Toledo, P. (2015). Readability, Content, and Quality Assessment of Web-Based Patient Education Materials Addressing Neuraxial Labor Analgesia. Anesthesia & Analgesia. 121(5), pp. 1295–1300. 10.1213/ANE.0000000000000888

Peiris, R., Cornella, S., Greaves, K., Bonnera, C. (2021).Do hospital consent forms for cardiology procedures meet health literacy standards? Evaluation of understandability and readability. Patient Education and Counseling (in press). https://doi.org/10.1016/j.pec.2021.08.027

Piñero López, M. A. (2014). Evaluación de la comprensibilidad y legibilidad de prospectos de medicamentos biotecnológicos. Tesis Doctoral. Facultad de Farmacia. Departamento de Farmacia y Tecnología Farmacéutica. Universidad de Barcelona.

Polishchuk, D., Hashem, J. y Sabharwal, S. (2012). Readability of online patient education materials on adult reconstruction web sites. The Journal of Arthroplasty, 27, pp. 716–719. doi: 10.1016 / j.arth.2011.08.020

Porras-Garzón., J.M., Estopà, R. (2020). Escalas de legibilidad aplicadas a informes médicos: límites de un análisis cuantitativo formal. Círculo de Lingüística Aplicada a la Comunicación, 83, pp. 205-216. http://dx.doi.org/10.5209/clac.70574

Powers, R. D., Sumners, W.A, Kearl, B.E. (1958). A recalculation of four adult readability formulas. Journal Education Psychology, 49, pp. 99–105. 10.1037 / h0043254

Reichow, B., Shefcyk, A., Bruder, M.B. (2013). Quality comparison of websites related to developmental disabilities. Research in Developmental Disabilities 34, pp. 3077–3083. doi: https://doi.org/10.1016/j.ridd.2013.06.013

Reynolds, R., Scannell, M., Collins, S., Colavita, J. (2022). Readability and health literacy level of post-exposure prophylaxis patient education materials offered after sexual assault. International Emergency Nursing, 61. https://doi.org/10.1016/j.ienj.2021.101104

Richaudeau, F. (1984). La Legibilidad. Investigaciones Actuales. Fundación Sánchez Ruipérez. Ed. Pirámide.

Rishabh, B.S., Anjani, B.A., Raghav, M.P.H., Scott, J.F. (2020). 14042 Readability of online Spanish-language patient education materials in dermatology. Journal of the American Academy of Dermatology, 83, 6. https://doi.org/10.1016/j.jaad.2020.06.603

Risoldi, Z., Gregory, P., Wilson, A. (2012). Readability of consumer health information on the internet: a comparison of U.S. government-funded and commercially funded websites. Journal of Health Communication, 17, pp. 1003-1010. doi:10.1080/10810730.2011.650823

Rose, D.E. y Levinson, D. (2004). Understanding user Goals in Web Search. Proc. Of Satisficing information needs. Journal of Documentation, 63(1), pp. 74-89. http://www.ambuehler.ethz.ch/CDstore/www2004/docs/1p13.pdf

Rubiera, G., Arbizub, R., Alzuetac, A., Agúndez, J.J., Rierab, J.R. (2004). La legibilidad de los documentos de consentimiento informado en los hospitales de Asturias. Gaceta Sanitaria, 18(2), pp. 153-158.

Salmon, C., O’ Conor, R., Singh, S., Ramaswamy, R., Kannry, J… Wolf, M. (2016). Characteristics of outpatient clinical summaries in the United States. International Journal of Medical Informatics, 94, pp. 75-80. doi:http://dx.doi.org/10.1016/j.ijmedinf.2016.06.005

San Norberto, E., Taylor, J., Salvador, R., Revilla, A., Merino, B., Vaquero, C. (2011). Calidad de la información disponible en internet sobre el aneurisma de aorta y su tratamiento endovascular. Revista Española de Cardiología, 64(10), pp. 869–875

Sanghvi, S., Cherla, D. V., Shukla, P. A., Eloy, J. A. (2012), Readability assessment of internet-based patient education materials related to facial fractures. The Laryngoscope, 122, pp. 1943–1948. doi:10.1002/lary.23424

Scullard, P., Peacock, C; Davies, P. (2010) Googling children's health: reliability of medical advice on the internet. Archives of Disease in Childhood, 95, pp. 580–582.doi: 10.1136 / adc.2009.168856

Shambavi, J., Rao., J.C., Nickel, NI., Navarro, L., Madden, L. (2021). Readability Analysis of Spanish Language Patient-Reported Outcome Measures in Laryngology. Journal and Voice, (Articulo in press) https://doi.org/10.1016/j.jvoice.2021.09.025

Sheridan, G.A., O'Brien, C., Masri, B.A., Duncan, C.P., Garbuz, D.S. (2020). Revision total hip arthroplasty: an analysis of the quality and readability of information on the internet. World Journal Orthoped, 11 (2), pp. 82-89. https://dx.doi.org/10.5312%2Fwjo.v11.i2.82

Shoemaker, S.J., Wolf, M.S., Brach C. (2014). Development of the Patient Education Materials Assessment Tool (PEMAT): A new measure of understandability and actionability for print and audiovisual patient information. Patient Educations Counseling, 96, pp. 395–403. http://dx.doi.org/10.1016/j.pec.2014.05.027

Simón-Lorda, P., Barrio Cantalejo, I.M., Concheiro Carro, L. (1996). Legibilidad de los Formularios Escritos de Consentimiento Informado. Medicina Clínica, 107, pp. 524-529.

Sowter, J., Astin, F., Dye, L., Marshall, P., Knapp, P. (2016). Assessment of the quality and content of website health information about herbal remedies for menopausal symptoms. Maturitas, 88, pp. 16 – 22. doi: http://dx.doi.org/10.1016/j.maturitas.2016.02.016

Statista: The Statistics Portal. Worldwide market share of leading search engines. Recuperado de: https://www.statista.com/statistics/216573/worldwide-market-share-of-search-engines/

Stavropoulou-Tatla, S., Hazra, D., Awal., Fardanesh, F., McCaig., F., Hossain, M. (2022). Evaluating the Quality and Readability of Online Resources on Unspecified Kidney Donation. Transplantation Proceedings, (in press). https://doi.org/10.1016/j.transproceed.2021.12.047https://s100.copyright.com/AppDispatchServlet?publisherName=ELS&contentID=S0041134522001063&orderBeanReset=true

Stefu, J., B Slavych, B., Zraick, R.I. (2021). Patient-Reported Outcome Measures in Voice: An Updated Readability Analysis. Journal of Voice, (Article in press). https://doi.org/10.1016/j.jvoice.2021.01.028

Storr, T., Maher, J, y Swanepoel, E. (2016) Online nutrition information for pregnant women: a content analysis. Maternal & Child Nutrition, 13, e12315.: 10.1111/mcn.12315

Stvilia, B., Mon, L., Yi, Y.J. (2009). A model for online consumer health information quality. Journal of the Association Information Science and technology, 60, pp. 1781–1791. 10.1002/asi.21115

Su-I Hou (2012). Health Literacy Online. A Guide to Writing and Designing Easy-to-Use. Health Promotion Practice, 13 (5), pp. 577 – 580. 10.1177/1524839912446480

Szmuda, T., Özdemir, C., Ali, S., Singh, A., Syed, M.T., Słoniewski, P. (2020). Readability of online patient education material for the novel coronavirus disease (COVID-19): a cross-sectional health literacy study. Public Health, 185, pp. 21-25. https://doi.org/10.1016/j.puhe.2020.05.041

Taki, S., Campbell, K.J., Russell, C.G., Elliott, R., Laws, R., Denney-Wilson, E. (2015) Infant Feeding Websites and Apps: A Systematic Assessment of Quality and Content Interact. Journal of Medical Research, 4(3), 18. 10.2196/ijmr.4323

Taylor, D.M., Fraser, S., Dudley, C., Oniscu, G.C., Tomson, C., Ravanan, R., Roderick, P. (2018). Health literacy and patient outcomes in chronic kidney disease: a systematic review. Nephrol, Dialysis, Transplant, 33 (9), pp. 1545-1558. 10.1093/ndt/gfx293

Taylor, H.E, Bramley, D.E. (2012). An analysis of the readability of patient information and consent forms used in research studies in anaesthesia in Australia and New Zealand. Anaesthesia Intensive Care, 40(6), pp. 995–998.

Thorndike, E. L y Lorge, I.A. (1932). The Teacher´s Word Book of 20.000 Words Found Most Frequently and Widely in General Reading for Children and Young People. Teacher´s College.

Thorndike, E.L y Lorge, I.A. (1944). The Teacher´s Word Book of 30.000 Words. New York. New York Teacher´s College. Colombia University: Bureau of Publications.

Thorndike, E.L. (1917a). The Psychology on Thinking in the Case on Reading Psychological. Review, 24, pp. 220-234. 10.1037 / h0071258

Thorndike, E.L. (1917b). Reading and Reasoning: A Study of Mistakes in Paragraph Reading. Journal Educational Psychology, 8, pp. 323-332.: 10.1037 / h0075325

Thorndike, E.L. (1917c). The Understanding of Sentences. Journal Educational Psychology, 18, pp. 98-114.: http://www.jstor.org/stable/993655 [acceso marzo 2017]

Thorndike, E.L. (1921). A Teacher`s Word Book. New York: Teachers College. Columbia University

UIT (2021). 2.900 millones de personas siguen careciendo de conexión. Unión Internacional de Telecomunicaciones (UIT). https://www.itu.int/es/mediacentre/Pages/PR-2021-11-29-FactsFigures.aspx

Unaka, N.I., Statile, A., Haney, J., Beck, A.F., Brady, PW… Karen, E. (2017). Assessment of readability, understandability, and completeness of pediatric hospital medicine discharge instructions. Journal of Hospital Medicine 2, pp. 98-101.10.12788/jhm.2688

Vargas C., Chuang D., Ganor O., Lee B. (2014). Readability of online patient resources for the operative treatment of breast cancer. Surgery, 156, pp. 311–318. 10.1016 / j.surg.2014.03.004

Villamañan, E, Ruano, M, Fernandez-Uzquiano, E, Lavilla, P, Gonzalez, D, Freire, M, Sobrino, C, Herrero, A. Informed consent in clinical research; Do patients understand what they have signed? Farmacia Hospitalaria, 40 (3), pp. 209–218. 10.7399/fh.2016.40.3.10411

Vogel, M, y Washburne, C. (1928). An Objective Method of Determining Grade Placement of Children’s Reading Material. The Elementary School Journal, 28, 373-381. Original Disponible en: DuBay WH. The Classic Readability Studies. (Libro electrónico). http://www.ecy.wa.gov/quality/plaintalk/resources/classics.pdf

Walsh, T. y Volsko, T. (2008) Readability assessment of internet-based consumer health information. Respiratory Care, 53(10), pp. 1310–1315.

Wang, L.W., Miller, M.J., Schmitt, M.R., Wen, F.K. (2013). Assessing readability formula differences with written health information materials: application, results, and recommendations. Research in Social Administrative Pharmacy, 9, pp. 503–516. http://dx.doi.org/10.1016/j.sapharm.2012.05.009

Williams, A., Cunninghama, A., Hutchings, H., Harrisa, A., Evansa, D. (2022). Quality of internet information to aid patient decision making in locally advanced and recurrent rectal cancer. The Surgeon. (In press).https://doi.org/10.1016/j.surge.2021.12.008

Worrall, A., Connolly, M.J., O’Neill, A., O’ Doherty, M., Thornton, K., McNally, C…De Barra, E. (2020). Readability of online COVID-19 health information: a comparison between four English speaking countries. BMC Public Health, 20, 1635. https://doi.org/10.1186/s12889-020-09710-5

Yaqub, M., Ghezzi, P. (2015). Adding dimensions to the analysis of the quality of health information of websites returned by Google: cluster analysis identifies patterns of websites according to their classification and the type of intervention described. Frontiers in Public Health, 3, 204. 10.3389/fpubh.2015.0020

Zellmer, C., Zimdars, P., Parker, S., Safdar, N. (2015). Evaluating the usefulness of patient education materials on surgical site infection: a systematic assessment. American Journal Infection Control, 43, pp. 167–168. 10.1016/j.ajic.2014.10.020

Zhang, Y. (2012). Consumer health information searching process in real life settings. Proceeding of the Association for Information. Journal of the Association for Information Science and Technology, 49, pp. 1–10. 10.1002/meet.14504901046

Zhang, Y., Sun, Y. y Xie, B. (2015), Quality of health information for consumers on the web: A systematic review of indicators, criteria, tools, and evaluation results. Journal of the Association for Information Science and Technology, 66, pp. 2071–2084. 10.1002/asi.23311

Zowalla, R., Pobiruchin, M., Weisner, M. (2018). Analyzing the readability of health information booklets on cardiovascular diseases. Stud Health Technol Inform, 253, pp. 16-20.

Descargas

Publicado

2022-07-22

Cómo citar

Pelicano Piris, N. (2022). Análisis de la legibilidad de la información sanitaria dirigida a la población vulnerable. Revista ProPulsión Interdisciplina En Ciencias Sociales Y Humanidades, 5(2), 140–171. https://doi.org/10.53645/revprop.v5i2.95

Artículos similares

También puede {advancedSearchLink} para este artículo.